COMMISSION DECISION

of 27 July 2010

on the appointment of the members of the European Union Committee of Experts on Rare Diseases set up by Decision 2009/872/EC

2010/C 204/02

THE EUROPEAN COMMISSION,

Having regard to the Treaty on the Functioning of the European Union,

Having regard to Commission Decision 2009/872/EC of 30 November 2009 establishing a European Union Committee of Experts on Rare Diseases(1), and in particular Article 3(4) thereof,

Whereas:

(1) According to Article 3(1) of Decision 2009/872/EC, the European Union Committee of Experts on Rare Diseases (hereinafter, ‘the Committee’) shall comprise 51 members and the corresponding alternates.

(2) According to Article 3(4) of Decision 2009/872/EC, among these 51 members, the following members shall be appointed by the Commission: four representatives from patients' organisations, four representatives of the pharmaceutical industry, nine representatives of ongoing and/or past Community projects in the field of rare diseases financed by programmes of Community action in the filed of health(2) including three members of the pilot European Reference Networks on rare diseases, and six representatives of ongoing and/or past rare diseases projects financed by the Community Framework Programmes for Research and Technological Development(3). The 27 representatives of the Member States shall be appointed by the Member States. The representative of the European Centre for Disease Prevention and Control (ECDC) shall be appointed by the ECDC.

(3) In accordance with Article 3(4) of Decision 2009/872/EC and with a view to selecting these members the Commission published four calls for expression of interest which specified the required qualifications and conditions to become member of the Committee. These calls led to lists of suitable candidates from which, based on the assessment criteria listed in the calls, the Commission hereby appoints the said members,

HAS DECIDED AS FOLLOWS:

Sole Article

The experts listed in the Annex to this Decision are appointed as members of the EU Committee on Rare Diseases.

Done at Brussels, 27 July 2010.

For the Commission

John DALLI

Member of the Commission

(1)  

OJ L 315, 2.12.2009, p. 18

.

(2)  

OJ L 155, 22.6.1999, p. 1

;

OJ L 271, 9.10.2002, p. 1

;

OJ L 301, 20.11.2007, p. 3

.

(3)  

OJ L 412, 30.12.2006, p. 1

.

ANNEX

List of experts appointed by the Commission as members of the EU Committee on Rare Diseases

1.   

Patients’ organisations

1.1.   

List in alphabetical order of representatives from patients’ organisations

1.2.   

List in alphabetical order of alternates from patients’ organisations

2.   

Pharmaceutical industry

2.1.   

List in alphabetical order of representatives from the pharmaceutical industry

2.2.   

List in alphabetical order of alternates from the pharmaceutical industry

3.   

Projects in the field of rare diseases financed by programmes of Community action in the field of health

3.1.   

List in alphabetical order of representatives from ongoing and/or past projects in the field of rare diseases financed by programmes of Community action in the field of health including three members of the pilot European Reference Networks on rare diseases

3.2.   

List in alphabetical order of alternates from ongoing and/or past projects in the field of rare diseases financed by programmes of Community action in the field of health

4.   

Projects in the field of rare diseases financed by the Community Framework Programmes for Research and Technological Development

4.1.   

List in alphabetical order of representatives from ongoing and/or past projects in the field of rare diseases financed by the Community Framework Programmes for Research and Technological Development

4.2.   

List in alphabetical order of alternates from ongoing and/or past projects in the field of rare diseases financed by the Community Framework Programmes for Research and Technological Development